Meet Cooper
Every foundation has a story. Ours begins with our son Cooper — and a diagnosis that changed everything. This is about his wellbeing: the medical battles, the emotional journey, and the financial reality of fighting for a child with no roadmap.
Cooper's Story
Cooper is 3 months old, full of smiles, and already one of the strongest people we know. He has a big brother named Cash who is 2 years old, and together they are the heart of our family. What started as a routine concern — low weight gain and a slight jaundice color — turned into a journey none of us could have anticipated. That will not stop us. We will push on!
His Medical Journey
What began as a visit for low weight gain and mild jaundice led to 7 days at CHOC (Children's Hospital of Orange County) followed by 7 more days at UCLA. It was there, after an exhaustive process, that Cooper was diagnosed with FARSA-related Rajab interstitial lung disease with brain calcifications type 2 — one of the rarest genetic diseases in the world, with fewer than 20 known cases.
Seeking the Best Care
Since Cooper's diagnosis, we have been relentless in finding the best possible care. We are pursuing consultations with leading specialists across the country — including teams in Boston, Philadelphia, and Cincinnati. We have also reached out to doctors around the globe who have encountered similar cases. These trips and consultations are costly, and every donation helps make them possible.
The Financial Reality
Caring for a child with a rare disease comes with costs most families never anticipate — specialist travel, hospital stays, medical equipment, and the daily expenses that pile up when a parent needs to be by their child's side. Your support helps lift that weight so we can focus on what matters most: Cooper.
Cooper Today
Through all of this, Cooper has stayed happy. He smiles, he brings joy to everyone around him, and he reminds us every single day why we fight. He doesn't know the weight of his diagnosis — he just knows he is loved. Each day we cherish the chance to take him outside, let him hear birds chirping, feel the wind, and experience the world's simple wonders for the first time.
"We stay optimistic that between our research, our teams of doctors, and the future research we will push for, there will be a better way to diagnose, treat, and cure this disease."
— Cooper's parents
Our Family
Cooper is the youngest of two boys. His big brother Cash is 2 years old and full of energy — the kind of big brother every little one deserves. Our family has been through more in the past few months than most face in a lifetime, but we face it together. We are constantly reminding ourselves that family — through blood or marriage — is everyone who stands beside you in a time of need.
We created Cooper's Path because no family should navigate a diagnosis like this alone. When we searched for answers, resources, and other families who understood what we were going through, we found almost nothing. We are building what we wish had existed — for Cooper, for Cash, and for every family who comes after us.
Stand With Cooper
Your donation helps cover Cooper's medical care, specialist travel, and the daily costs of fighting a disease with no roadmap. It also lets our family know the world is standing with us.