Help CooperLive His Best Life.
At just 3 months old, our son Cooper was diagnosed with one of the rarest genetic diseases in the world. Your support helps cover his medical care, specialist visits, travel costs, and gives our family the strength to keep fighting — one day at a time.
Our Why
Meet Cooper
At just 3 months old, our son Cooper was diagnosed with FARSA-related Rajab interstitial lung disease with brain calcifications type 2 — one of the rarest genetic diseases in the world.
The FARSA gene mutation disrupts the body's ability to produce a critical enzyme, leading to progressive lung disease and calcifications in the brain. There are no approved treatments. There is no roadmap. But there is hope — and that hope lives in the people who show up for Cooper.
We started Cooper's Path not just for Cooper, but for every family who will receive this devastating diagnosis. Your support — financial, emotional, and through awareness — is what makes the difference.
Our Mission
Three Ways We Support Cooper
Every dollar raised goes directly toward giving Cooper — and families like his — the financial relief, emotional support, and medical access they need.
Financial Support
Medical bills, specialist travel, hospital stays, and daily care costs add up fast. Your donations help ease the financial burden so Cooper's family can focus on him — not the bills.
Emotional Support
Navigating a diagnosis this rare is isolating. We connect families with others who truly understand, providing community, comfort, and the reassurance that no one walks this road alone.
Medical Support
We help families access the best specialists in the country — covering consultation costs, coordinating with leading geneticists, and pushing for research that could change outcomes.
The Science
Understanding FARSA-Related Disease
FARSA encodes phenylalanyl-tRNA synthetase alpha subunit — a critical enzyme involved in protein synthesis. Mutations in this gene disrupt cellular function in the lungs and brain, leading to progressive interstitial lung disease and brain calcifications.
With fewer than 20 ever known cases worldwide, this disease is profoundly understudied. Your support directly helps Cooper and families like his that are navigating this.
Cooper Needs Your Help
Every donation directly supports Cooper's medical care, specialist visits, travel to treatment centers, and the daily costs of living with a rare disease. It also helps our family stay strong emotionally — knowing our community stands with us.